REFINING CARE NETWORK MEASURES FOR DIVERSE DEMENTIA CAREGIVERS USING CROSS-CULTURAL COGNITIVE INTERVIEWING
2024

Improving Surveys for Diverse Dementia Caregivers

Sample size: 20 publication Evidence: moderate

Author Information

Author(s): Howe Melissa, Tiburcio Alan Rodriguez, Pudelek Kelly, Zhong Selena, Compernolle Nell, Piedra Lissette

Primary Institution: NORC at the University of Chicago

Hypothesis

Can cross-cultural cognitive interviewing improve the understanding of survey questions among diverse dementia caregivers?

Conclusion

The study found that refining survey questions based on caregiver feedback can enhance understanding and data quality.

Supporting Evidence

  • Interviews revealed variations in understanding of survey terms among caregivers.
  • Refinements to survey questions were based on caregiver feedback.
  • The iterative process involved both initial and follow-up interviews.

Takeaway

This study helps make sure that questions for caregivers are easy to understand, so we get better answers.

Methodology

The study used cross-cultural cognitive interviewing with 20 informal caregivers to test and refine survey questions.

Potential Biases

Potential bias in participant selection may affect the generalizability of the findings.

Limitations

The study focused only on caregivers who primarily speak American English and may not represent all cultural groups.

Participant Demographics

Participants included caregivers from diverse ethnoracial and gender identities, education backgrounds, and geographic locations.

Digital Object Identifier (DOI)

10.1093/geroni/igae098.3887

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