THE MEN IN DEMENTIA CAREGIVING: UNDERSTANDING MEN’S EXPERIENCES
2024

Understanding Men's Experiences in Dementia Caregiving

publication

Author Information

Author(s): Lindauer Allison, Hepburn Kenneth

Primary Institution: Oxford University Press US

Hypothesis

What motivates men to participate in dementia caregiving research?

Conclusion

Men experience burdens similar to women in caregiving roles and have unique insights and needs that should be addressed in research.

Supporting Evidence

  • Men, like women, experience burden in the caregiving role.
  • Men are at higher risk for health problems than non-caregivers.
  • Men may experience role confusion and feel unprepared to assume the caregiving role.

Takeaway

About 30% of dementia caregivers are men, and they face challenges like feeling unprepared and experiencing health issues.

Methodology

The study includes quantitative and qualitative data from focus groups discussing men's motivations and concerns regarding caregiving research.

Limitations

Limited information exists about men's experiences and engagement in caregiving research.

Participant Demographics

The study focuses on Black American men, men caring for family members with primary progressive aphasia, and men caring for family members with advanced dementia.

Digital Object Identifier (DOI)

10.1093/geroni/igae098.0122

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