Young People with Sickle Cell Disorder in Schools
Author Information
Author(s): Simon M Dyson, Karl Atkin, Lorraine A Culley, Sue E Dyson, Hala Evans
Primary Institution: De Montfort University
Hypothesis
How do young people with sickle cell disorder negotiate their experiences in schools?
Conclusion
Young people with sickle cell disorder face significant challenges in schools due to conflicting demands from medical care and educational expectations.
Supporting Evidence
- Young people with sickle cell are habitually positioned between the demands of health maintenance and school expectations.
- Teachers often misunderstand the needs of students with sickle cell, leading to inadequate support.
- School policies frequently do not accommodate the medical needs of students with chronic illnesses.
Takeaway
Kids with sickle cell disease have a tough time at school because they need special care, but schools often don't understand that.
Methodology
The study used thematic analysis of 40 interviews with young people living with sickle cell disorder.
Potential Biases
Potential bias in self-reported experiences and the influence of the interviewers' perspectives.
Limitations
The study may not represent all experiences of young people with sickle cell disorder due to its qualitative nature and specific demographic focus.
Participant Demographics
{"gender":{"female":21,"male":19},"age":{"5-10":2,"11-18":30,"19-25":8},"ethnicity":{"Black African":24,"Black Caribbean":15,"British Asian (Indian)":1}}
Digital Object Identifier (DOI)
Want to read the original?
Access the complete publication on the publisher's website