Self vs Proxy Reporting in Juvenile Idiopathic Arthritis
Author Information
Author(s): Hendry Gordon J, Gardner-Medwin Janet, Turner Debbie E, Woodburn Jim, Lorgelly Paula K
Primary Institution: School of Biomedical and Health Sciences, University of Western Sydney
Hypothesis
What is the level of agreement between self- and proxy-reported health-related quality of life in juvenile idiopathic arthritis?
Conclusion
There is at best moderate agreement between patients with juvenile idiopathic arthritis and their parent-proxies on health-related quality of life measures.
Supporting Evidence
- Self-care and usual activities showed moderate agreement between self and proxy reports.
- Mobility, pain, and anxiety showed less than moderate agreement.
- Good agreement was found for the EQ5D visual-analogue-scale.
- Poor agreement was observed for the utility index.
Takeaway
Kids and their parents sometimes see health differently, and this study shows they don't always agree on how the kid is feeling.
Methodology
The study used the EQ5D measure of health-related quality of life, comparing self- and proxy-reports from patient-parent pairs.
Potential Biases
Potential bias in reporting due to differing perceptions between children and parents.
Limitations
The study's findings may not be generalizable beyond the specific population studied.
Participant Demographics
Participants were juvenile idiopathic arthritis patients and their parent/guardian proxies.
Statistical Information
Confidence Interval
95%
Digital Object Identifier (DOI)
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