Accessing the Lived Experiences of Children with Illness in Sweden for Health Care Research
2024

Understanding Children's Experiences with Illness in Sweden

Sample size: 9 publication 10 minutes Evidence: moderate

Author Information

Author(s): Darcy Laura, Israelsson-Skogsberg Åsa, Kleye Ida, Karlsson Katarina

Primary Institution: University of Borås, Sweden

Hypothesis

How can researchers effectively gather the lived experiences of children with illness in Sweden?

Conclusion

The study highlights the importance of using child-friendly methods to ensure that children's voices are heard in health research.

Supporting Evidence

  • Children have the right to express their own experiences in healthcare settings.
  • Using visual methods like photography can help children articulate their feelings.
  • Interviews conducted in familiar settings can lead to more open communication.
  • Children's perspectives are often overlooked in health research, but they are crucial for understanding their experiences.

Takeaway

This study shows that children can share their feelings about being sick, and researchers can use fun ways like play and pictures to help them talk.

Methodology

Qualitative methods including interviews, video observations, and participatory approaches were used to gather data from children aged 3 to 12.

Potential Biases

Potential bias from parental influence during interviews and the presence of healthcare staff.

Limitations

The study faced challenges related to communication barriers, emotional and psychological issues, and the complexities of parental involvement.

Participant Demographics

Children aged 3 to 12 years, including those with cancer, home mechanical ventilation, and undergoing needle-related procedures.

Digital Object Identifier (DOI)

10.3390/children11121477

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