Strategies to Implement a Community-Based, Longitudinal Cohort Study: The Whole Communities-Whole Health Case Study
2024

Strategies for a Community-Based Health Study

Sample size: 486 publication 10 minutes Evidence: moderate

Author Information

Author(s): Mavragani Amaryllis, Gordon Kristina, Bouchacourt Lindsay, Smith Sarah, Mackert Michael, Almalki Shoaa, Awad Germine, Barczyk Amanda, Bearman Sarah Kate, Castelli Darla, Champagne Frances, de Barbaro Kaya, Garcia Shirene, Johnson Karen, Kinney Kerry, Lawson Karla, Nagy Zoltan, Quiñones Camacho Laura, Rodríguez Lourdes, Schnyer David, Thomaz Edison, Upshaw Sean, Zhang Yan

Primary Institution: The University of Texas at Austin

Hypothesis

How can a community-based, longitudinal cohort study effectively engage families and collect health data?

Conclusion

The Whole Communities-Whole Health initiative successfully identified strategies for implementing a community-based longitudinal study that balances participant burden and enhances data collection.

Supporting Evidence

  • The study involved 154 families and 486 participants over a 5-year period.
  • Participants were compensated for their involvement, with varying amounts based on family size.
  • The initiative focused on families in a community facing health disparities.

Takeaway

This study shows how researchers can work with families in a community to learn about health while making it easy for them to participate.

Methodology

The study used a Plan-Do-Study-Act model to identify effective strategies for data collection and community engagement.

Potential Biases

Potential bias from families who prioritize health may not represent the broader community.

Limitations

The study faced challenges in maintaining timely data return reports and ensuring feedback from less engaged participants.

Participant Demographics

{"sex":{"female":87,"male":4},"race":{"African American":14,"Arab":1,"Asian":2,"Chicano/Latino":36,"White":23},"education":{"less than high school":7,"high school/GED":27,"college":20,"master's":8,"some college":23,"professional degree":3},"employment_status":{"full time":64,"part time":4,"stay-at-home":4,"student":3,"unable to work":2,"not working":7}}

Digital Object Identifier (DOI)

10.2196/60368

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