CHALLENGES IN SUPPORTIVE CARE DECISION-MAKING IN THE CONTEXT OF ALZHEIMER’S DISEASE AND RELATED DEMENTIAS
2024
Challenges in Supportive Care Decision-Making for Alzheimer's Disease
Sample size: 79
publication
Author Information
Author(s): Taylor Jean, Turner Anne
Primary Institution: University of Washington
Hypothesis
How can we better involve persons with dementia in supportive care decision-making?
Conclusion
The study emphasizes the need for early and ongoing support in planning for dementia care transitions.
Supporting Evidence
- Persons with dementia often decline in their involvement in decision-making as their condition progresses.
- Participants described challenges such as lack of understanding of their diagnosis and inability to plan for the future.
- Professionals suggested that decision tools should be provided as soon as possible after diagnosis.
Takeaway
People with dementia and their caregivers often struggle to make decisions about care, so it's important to help them plan early.
Methodology
In-depth online interviews with older adults with dementia, caregivers, and professionals.
Limitations
Participants may not have fully accepted their diagnosis, affecting their readiness to plan.
Participant Demographics
24 older adults with dementia, 37 informal caregivers, and 18 professionals.
Digital Object Identifier (DOI)
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