Survey on Melanoma Databases and Their Sustainability Challenges
Author Information
Author(s): Mesgarzadeh Sheyda BS, Myrdal Caitlyn N. MD, Gong Amanda H. BS, Stratton Delaney B. PhD, DNP, FNP-BC, Kelly Brenna G. MD, Curiel-Lewandrowski Clara MD
Primary Institution: University of Arizona College of Medicine-Tucson
Hypothesis
What are the challenges and characteristics of melanoma databases as perceived by the Melanoma Prevention Working Group?
Conclusion
The study reveals significant variability in melanoma database maintenance and highlights key challenges faced by institutions.
Supporting Evidence
- 28 out of 83 institutions responded to the survey, indicating a 34% response rate.
- 57% of responding institutions maintained an active melanoma database.
- 95% of databases captured demographic data, while only 50% documented genetic testing.
Takeaway
This study looked at how different hospitals keep track of melanoma cases and found that many face challenges in maintaining their databases.
Methodology
Voluntary web-based surveys were distributed to members of the Melanoma Prevention Working Group, with responses collected over a year.
Potential Biases
Response bias may affect the findings due to the voluntary nature of the survey.
Limitations
The study is limited to MPWG-affiliated institutions and may have response bias.
Participant Demographics
Participants were from 28 institutions, primarily in the United States (90%).
Digital Object Identifier (DOI)
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