The Experiences of Disclosing Alzheimer’s Disease in the US Workplace
2024

Experiences of Disclosing Alzheimer's Disease in the Workplace

Sample size: 16 publication

Author Information

Author(s): Gibson Allison, Coccia Kathryn, Hasten Lauren

Primary Institution: Saint Louis University

Hypothesis

How do individuals with Alzheimer's disease experience disclosing their diagnosis in the workplace?

Conclusion

Many individuals with Alzheimer's disease were able to continue working when they felt supported by their employers and had access to reasonable accommodations.

Supporting Evidence

  • Participants who felt supported by their supervisors were more likely to disclose their diagnosis.
  • Those who did not disclose often feared a lack of reasonable accommodations.
  • Many participants were able to continue working until retirement or shifted to new roles.

Takeaway

People with Alzheimer's disease can keep working if their bosses help them and make adjustments to their jobs.

Methodology

Interviews were conducted with 16 individuals living with Alzheimer's disease using a modified grounded theory approach and thematic analysis.

Limitations

Some participants faced challenges accessing disability resources.

Participant Demographics

Participants had a mean age of 66 and were living with Alzheimer's disease or related dementia.

Digital Object Identifier (DOI)

10.1093/geroni/igae098.3575

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