Partnering with Community on a Successful Federal Funding Application for Mesothelioma Caregivers
2024

Partnering with Community on a Successful Federal Funding Application for Mesothelioma Caregivers

publication

Author Information

Author(s): Woodward Amanda, Towe Maria, Hirsch Jen, White Julie

Primary Institution: Michigan State University

Hypothesis

The research questions emerged from a survey the Meso Foundation administered to its community.

Conclusion

The project aims to develop and test an online caregiver support intervention based on community-driven research.

Supporting Evidence

  • The project follows key principles of the Community-Engaged Research Framework.
  • The research is driven by community input through a survey administered by the Meso Foundation.
  • The team includes members with lived experiences who are compensated for their contributions.

Takeaway

This study is about working with the community to create a helpful online program for caregivers of mesothelioma patients.

Methodology

The project involves in-depth interviews and focus groups with patients, caregivers, and health professionals to understand the caregiver experience.

Participant Demographics

Participants include patients, caregivers, those who have lost a loved one, and health professionals.

Digital Object Identifier (DOI)

10.1093/geroni/igae098.3878

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