Adapting the Integrated Palliative Outcome Scale for Dementia in Switzerland
Author Information
Author(s): de Wolf-Linder Susanne, Kramer Iris, Reisinger Margarete, Murtagh Fliss E. M., Schubert Maria, Ramsenthaler Christina
Primary Institution: ZHAW Zurich University of Applied Sciences
Hypothesis
Can the Integrated Palliative Outcome Scale (IPOS-Dem) be effectively adapted for use in acute and community care settings in Switzerland?
Conclusion
The adapted IPOS-Dem (CH) is a relevant and comprehensive tool for assessing palliative care needs in individuals with dementia.
Supporting Evidence
- The IPOS-Dem (CH) was judged as clinically useful by participants.
- Semantic equivalence was achieved after 14 changes to the wording of items.
- Participants reported improved communication and teamwork in care settings.
- The tool allows for better monitoring of symptoms and care priorities.
Takeaway
This study shows that a new tool can help caregivers and nurses understand and support people with dementia better.
Methodology
A multi-step, cross-sectional, multi-method study involving focus groups and cognitive debriefing with nurses and relatives.
Potential Biases
Potential selection bias due to the recruitment of informal caregivers primarily from existing contacts.
Limitations
The study's online format due to COVID-19 may have affected data richness and representativeness.
Participant Demographics
Participants included 8 native speakers from the public, 16 nurses and informal caregivers in focus groups, and 8 nurses and informal caregivers in cognitive interviews.
Digital Object Identifier (DOI)
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