Collaborating with consumer and community representatives in health and medical research in Australia: results from an evaluation
2011

Collaborating with Community in Health Research

Sample size: 22 publication 10 minutes Evidence: moderate

Author Information

Author(s): Janet M Payne, Heather A D'Antoine, Kathryn E France, Anne E McKenzie, Nadine Henley, Anne E Bartu, Elizabeth J Elliott, Carol Bower

Primary Institution: Telethon Institute for Child Health Research

Hypothesis

How do researchers and community representatives perceive the impact of consumer participation in health research?

Conclusion

Consumer and community participation is essential for enhancing research processes and outcomes in health research.

Supporting Evidence

  • 93.8% of researchers agreed that consumer participation enhanced the project.
  • Consumer representatives felt their contributions were valued and influenced decisions.
  • Both researchers and community representatives identified areas for improvement in future research.

Takeaway

When researchers work with community members, they can make better decisions and improve health research.

Methodology

The study involved forming reference groups and collecting feedback through questionnaires from researchers and community representatives.

Potential Biases

Potential bias due to the small sample size and self-selection of participants.

Limitations

The response rate from community representatives was low, which may affect the generalizability of the findings.

Participant Demographics

Participants included 15 researchers and 7 community representatives, with a focus on Aboriginal and non-Aboriginal women.

Digital Object Identifier (DOI)

10.1186/1478-4505-9-18

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