A scoping review of the electronic collection and capture of patient reported outcome measures for children and young people in the hospital setting
2025

Electronic Collection of Patient Feedback for Children in Hospitals

Sample size: 85 publication Evidence: moderate

Author Information

Author(s): Alarilla Anne, Sebire Neil J., Keith Josh, Cortina-Borja Mario, Wray Jo, Davies Gwyneth

Primary Institution: UCL Great Ormond Street Institute of Child Health, London, United Kingdom

Hypothesis

What are the electronic systems used for the collection, storage, and access of patient-reported outcome measures (PROMs) for children and young people in hospital settings?

Conclusion

The review found significant variability in the electronic systems used for collecting, storing, and accessing PROMs, indicating a need for standardized approaches.

Supporting Evidence

  • 85 studies met the inclusion criteria from an initial 372 studies reviewed.
  • 89% of studies collected PROMs electronically.
  • The review highlights the importance of considering technical aspects for effective implementation of PROMs.

Takeaway

This study looked at how hospitals collect feedback from kids about their health using electronic tools, and found that there are many different ways to do it, which can make things confusing.

Methodology

The study used a scoping review methodology, searching seven databases for relevant studies and analyzing data through frequency counts and thematic mapping.

Limitations

The review may not fully represent all technical aspects of PROMs implementation as not all details are published in academic literature.

Participant Demographics

Children and young people aged from birth to 25 years, including their proxies and clinicians.

Digital Object Identifier (DOI)

10.1371/journal.pdig.0000704

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