Understanding Caregiver Burden in Decision-Making in Alzheimer’s Disease and Related Dementias
2024
Understanding Caregiver Burden in Alzheimer's Disease and Related Dementias
Sample size: 84
publication
Author Information
Author(s): Ginn Brandi, Arteaga Ignacia, de Jesús Alma Hernández, Abramson Corey, Dohan Daniel
Primary Institution: University of California San Francisco
Conclusion
Caregivers experience significant emotional and practical burdens when making decisions about transitioning individuals with dementia to institutional care.
Supporting Evidence
- Caregivers face tensions between cultural narratives of independence and their own desires and resource constraints.
- Emotions such as frustration, guilt, and grief emerge as caregivers navigate the decision-making process.
Takeaway
Taking care of someone with dementia can be really hard, and caregivers often feel confused and stressed about when to move them to a care facility.
Methodology
The study used a comparative ethnographic approach, including three years of field observations and in-depth interviews.
Participant Demographics
Caregivers of people living with dementia in California and Maine.
Digital Object Identifier (DOI)
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