Building Inclusive Communities for People with Dementia: Taking the Lead from Lived Experience
2024
Building Inclusive Communities for People with Dementia
publication
Author Information
Author(s): Phinney Alison, Jackson Lynn, Landy Ania, Sakamoto Mariko
Primary Institution: University of British Columbia
Hypothesis
What does social citizenship mean for people with dementia from their own perspective?
Conclusion
The study found that involving people with lived experience of dementia is crucial for fostering community inclusion.
Supporting Evidence
- An action group of people with dementia identified stigma as their main concern.
- The toolkit was co-developed to raise awareness about stigma.
- Community stakeholders provided formative feedback on the toolkit.
- Implementation sessions explored the toolkit’s impact for community programs.
Takeaway
People with dementia have important insights about how to make communities better for them, and listening to them helps everyone.
Methodology
Participatory action research and developmental evaluation over four years.
Participant Demographics
People with dementia and community stakeholders.
Digital Object Identifier (DOI)
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