Family Caregiver Perspectives on the Palliative Care Needs of Hospitalized Persons Living with Dementia
2024

Family Caregiver Perspectives on Palliative Care Needs for Hospitalized Dementia Patients

Sample size: 37 publication

Author Information

Author(s): Kwak Jung, Kvale Elizabeth, Mills Sarah, Oppong Kwaku Duah

Primary Institution: The University of Texas Austin

Hypothesis

What are the palliative care needs of hospitalized persons living with dementia as perceived by their family caregivers?

Conclusion

Family caregivers play a critical role in managing care and making decisions for hospitalized persons living with dementia.

Supporting Evidence

  • Caregivers identified primarily as female (66%) and caring for parents (58%).
  • Most common challenges included addressing health issues (58%) and managing emotional difficulties (53%).
  • Three themes emerged: complex care needs, caregiver support needs, and challenges in care transitions.

Takeaway

Caregivers of people with dementia face many challenges and need support to help their loved ones in the hospital.

Methodology

Interviews with 37 caregivers of hospitalized persons living with dementia.

Limitations

The study may not capture all perspectives as it focuses only on caregivers of hospitalized patients.

Participant Demographics

66% female, 58% caring for parents, 46% White, 17% Black, 5% Asian, 31% Latino.

Digital Object Identifier (DOI)

10.1093/geroni/igae098.0666

Want to read the original?

Access the complete publication on the publisher's website

View Original Publication