Living with Young Onset Dementia in Residential Care: A Scoping Review
2024

Living with Young Onset Dementia in Residential Care: A Scoping Review

Sample size: 382 publication Evidence: moderate

Author Information

Author(s): Johansson Linda, Bielsten Therése

Primary Institution: Jönköping University

Hypothesis

This scoping review aimed to present the experiences of people with Young Onset Dementia living in residential care facilities.

Conclusion

The review highlights the importance of a home-like environment and age-adjusted activities for individuals with Young Onset Dementia in residential care.

Supporting Evidence

  • About 3.9 million people live with Young Onset Dementia worldwide.
  • The review included 13 qualitative studies from Europe, North America, and Australasia.
  • Four studies included experiences of persons with Young Onset Dementia.

Takeaway

This study looked at how young people with dementia feel about living in care homes and found that they want their homes to feel comfortable and have activities they enjoy.

Methodology

A literature search was conducted in multiple databases to find qualitative studies on the experiences of people with Young Onset Dementia and their family members.

Limitations

There were few studies focusing specifically on the perspectives of individuals with Young Onset Dementia.

Participant Demographics

90 persons with dementia and 292 family members participated, with a median of 9 and 17 participants respectively.

Digital Object Identifier (DOI)

10.1093/geroni/igae098.4014

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