The Role of User Input in Shaping Online Information From the National Cancer Institute
2005

User Input in Shaping Online Cancer Information

Sample size: 200 publication 10 minutes Evidence: moderate

Author Information

Author(s): Grama Lakshmi M, Beckwith Margaret, Bittinger Wayne, Blais Diana, Lollar Cindy, Middleswarth Anne, Noone Marianne, Price Deborah, Quint-Kasner Sharon, Shields Victoria, Wright Lawrence W, Jones Jennifer Bailey, Bob Query, Jim L Wright, Kevin

Primary Institution: National Cancer Institute

Conclusion

The National Cancer Institute's website has evolved significantly through user feedback, leading to improved cancer information resources.

Supporting Evidence

  • NCI's website was redesigned multiple times based on user feedback.
  • User input was gathered through various methods including surveys and focus groups.
  • Over 50% of website visitors identified as cancer patients or their families.

Takeaway

The National Cancer Institute asked people what they wanted to know about cancer online, and they made their website better based on those answers.

Methodology

The study used stakeholder meetings, focus groups, online surveys, usability testing, and search log analysis to gather user input.

Limitations

The article does not test specific hypotheses but rather presents an overview of methods used for gathering user input.

Participant Demographics

Participants included patients, advocates, clinicians, and health information providers.

Digital Object Identifier (DOI)

10.2196/jmir.7.3.e25

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