ASSISTED LIVING STAFF VIEWS OF FAMILY INVOLVEMENT IN PALLIATIVE CARE FOR RESIDENTS WITH DEMENTIA
2024

Family Involvement in Palliative Care for Dementia Residents

Sample size: 17 publication Evidence: moderate

Author Information

Author(s): Yauk Jessica, Dobbs Debra, Peterson Lindsay

Primary Institution: University of South Florida

Hypothesis

What are assisted living staff perspectives on family involvement in end-of-life care for residents with dementia?

Conclusion

Family involvement is crucial in all aspects of palliative care for residents with dementia, particularly in social and emotional support.

Supporting Evidence

  • Family involvement was noted in all four domains of palliative care.
  • Social and emotional support were the most frequently mentioned aspects of care.
  • Families performed less physically demanding tasks and relied on staff for more intensive care.

Takeaway

Families help take care of loved ones with dementia by providing emotional support and comfort, but they often need help with more physical tasks.

Methodology

Qualitative study with staff from six assisted living sites in Florida completing homework assignments about family involvement in care.

Participant Demographics

Staff from assisted living facilities in Florida.

Digital Object Identifier (DOI)

10.1093/geroni/igae098.2994

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