Consumer Participation in Health Research
Author Information
Author(s): Carla Saunders, Sally Crossing, Afaf Girgis, Phyllis Butow, Andrew Penman
Primary Institution: The Cancer Council NSW
Hypothesis
How can consumer and community participation in health and medical research be effectively operationalized?
Conclusion
The study demonstrates that it is possible and reasonable for research to consider public values through a structured consumer involvement process.
Supporting Evidence
- Consumer perspectives improve the relevance and translation of research into practice.
- Active consumer involvement can lead to better acceptance and uptake of research findings.
- Training and support for consumers are essential for effective participation in research.
Takeaway
This study shows that when people who use health services help decide what research gets funded, it can lead to better outcomes for everyone.
Methodology
The study describes the operationalization of a model framework for consumer participation in health research through a charity organization’s approach.
Limitations
The model may not be applicable to commissioned research initiatives aimed at specific research priorities.
Participant Demographics
Participants included consumers, non-commercial financial donors, and the public involved in cancer research.
Digital Object Identifier (DOI)
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