Clinical research without consent in adults in the emergency setting: a review of patient and public views
2008

Public Views on Emergency Research Without Consent

Sample size: 12 publication Evidence: low

Author Information

Author(s): Lecouturier Jan, Rodgers Helen, Ford Gary A, Rapley Tim, Stobbart Lynne, Louw Stephen J, Murtagh Madeleine J

Primary Institution: Institute of Health and Society, Newcastle University

Hypothesis

What are the public opinions regarding research without consent in emergency situations?

Conclusion

There is insufficient data to determine if the regulations allowing research without consent are acceptable to the public.

Supporting Evidence

  • Half of the surveyed public do not agree with research without consent in emergency situations.
  • Many participants expressed a willingness to participate in studies without consent despite general disapproval.
  • Public trust in medical research is a significant factor influencing opinions on research without consent.

Takeaway

Some people think it's okay to do research without asking them first, especially in emergencies, but many are unsure about it.

Methodology

The study reviewed literature on public opinions regarding research without consent in emergency settings, focusing on surveys and studies from the US, Canada, and EU.

Potential Biases

There may be a level of mistrust in medical research among patients.

Limitations

Most studies did not deeply investigate individual views on participation in studies without consent.

Participant Demographics

The studies included emergency department patients and visitors, with a focus on those in the US and UK.

Digital Object Identifier (DOI)

10.1186/1472-6939-9-9

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