Family Caregiving for Individuals with Parkinson’s Disease and Lewy Body Dementia in California
2024

Family Caregiving for Individuals with Parkinson’s Disease and Lewy Body Dementia

Sample size: 13649 publication Evidence: moderate

Author Information

Author(s): Whitney Robin, Bell Janice, Link Benjamin, Bhurtel Shikha, Ogugu Everlyne, Tonkikh Orly, Kelly Kathleen, Young Heather

Primary Institution: San Jose State, UC Davis, Family Caregiving Alliance

Hypothesis

Care recipient condition predicts caregiving outcomes among caregivers of individuals with PD/LBD compared to those with ADRD and other chronic conditions.

Conclusion

Caregivers of individuals with PD/LBD experience higher caregiving strain and worsening health compared to those caring for individuals with other conditions.

Supporting Evidence

  • PD/LBD caregivers were more likely to care for a spouse and spend over 40 hours a week on caregiving.
  • They assisted with more personal care compared to caregivers of other conditions.
  • Caregiving for PD/LBD was associated with increased caregiving strain and worsening health.

Takeaway

Taking care of someone with Parkinson’s or Lewy Body Dementia is really hard, and it can make caregivers feel more stressed and unhealthy.

Methodology

Data was extracted from CareNavTM, a statewide electronic platform, and multivariable logistic regression models were used to analyze caregiving outcomes.

Limitations

The study primarily focuses on caregivers in California and may not represent caregivers in other regions.

Participant Demographics

Majority of caregivers were older, female, white, college-educated, and retired.

Statistical Information

P-Value

0.01

Confidence Interval

95% CI [1.0-1.4]

Statistical Significance

p<0.01

Digital Object Identifier (DOI)

10.1093/geroni/igae098.0775

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