Impact of Celiac Disease on Adolescents' Quality of Life
Author Information
Author(s): Anna Rosén, Anneli Ivarsson, Katrina Nordyke, Eva Karlsson, Annelie Carlsson, Lars Danielsson, Lotta Högberg, Maria Emmelin
Primary Institution: Umeå University
Hypothesis
How does screening-detected celiac disease impact adolescents' quality of life?
Conclusion
Screening-detected celiac disease has varying impacts on adolescents' quality of life, balancing perceived health changes against social sacrifices.
Supporting Evidence
- 145 adolescents with screening-detected celiac disease were invited to share their experiences.
- 117 adolescents participated, providing narratives and engaging in focus groups.
- Results showed a range of perceived health changes and social sacrifices related to the diagnosis.
Takeaway
This study looked at how being diagnosed with celiac disease affects kids' lives, showing that some feel better health-wise but struggle socially.
Methodology
Qualitative study involving written narratives and focus group discussions with adolescents and their parents.
Potential Biases
Potential bias in self-reporting and selection of participants who had more positive experiences.
Limitations
The study may not capture all experiences as it relies on self-reported data and may be influenced by participants' willingness to share.
Participant Demographics
117 adolescents (53 girls, 48 boys) aged around 14.6 years, and their parents.
Digital Object Identifier (DOI)
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