Ambivalent and heavy burdened wanderers on a road less travelled: a meta-ethnography on end-of-life care experiences among family caregivers in rural areas
2024

End-of-Life Care Experiences of Family Caregivers in Rural Areas

Sample size: 240 publication Evidence: moderate

Author Information

Author(s): Breivik Elisabet, Ervik Bente, Kitzmüller Gabriele

Primary Institution: UiT The Arctic University of Norway

Hypothesis

The study aims to synthesize and reinterpret qualitative research on rural family caregivers of adult cancer patients at the end of life.

Conclusion

Family caregivers in rural areas face significant challenges due to long distances to healthcare services and a lack of support, impacting their well-being.

Supporting Evidence

  • Caregivers reported feeling overwhelmed by the responsibility of caring for their loved ones.
  • Long distances to healthcare services were a significant barrier for rural caregivers.
  • Community support was essential for caregivers but often insufficient.
  • Caregivers expressed a need for better access to palliative care education and resources.

Takeaway

Taking care of sick family members in rural areas is really hard because there aren't many doctors nearby, and caregivers often feel alone and overwhelmed.

Methodology

Meta-ethnography following Noblit and Hare’s approach, including a systematic literature search and qualitative synthesis.

Potential Biases

Potential biases due to the subjective nature of qualitative research and the limited perspectives from rural areas.

Limitations

The study may not include all relevant studies due to language and publication restrictions.

Participant Demographics

240 family caregivers, including 32 men, 108 women, and 39 individuals with unknown gender, aged 18 to 94.

Digital Object Identifier (DOI)

10.1186/s12913-024-11875-3

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