Advocacy Recruiting for Huntington’s Disease Clinical Trials
Author Information
Author(s): LaVonne Goodman, Cherrie Sia, Roger Carnes, Louise Taubman, Fred Venuto, Charles S. McGarry, Andrew Kieburtz, Karl Agarwal, Pinky
Primary Institution: Evergreen Neuroscience Institute
Hypothesis
Can advocacy-based recruiting improve participant enrollment in Huntington's disease clinical trials?
Conclusion
The study demonstrates that advocacy-based recruiting can effectively increase enrollment in Huntington's disease clinical trials.
Supporting Evidence
- Evergreen ranked third among 27 North American sites for participant recruitment.
- The rate of recruitment at Evergreen was the highest among all centers.
- Advocacy-based recruiting reduced the time and financial resources needed for recruitment.
Takeaway
This study shows that getting help from community advocates can help find more people to join clinical trials for Huntington's disease.
Methodology
The study utilized community advocates and web-based alerts to recruit participants for the HART trial.
Potential Biases
Potential bias from reliance on community advocates for recruitment.
Limitations
The study was conducted at a single site and may not be generalizable to other locations.
Participant Demographics
17 individuals screened, with demographics including gender, age, and distance traveled.
Digital Object Identifier (DOI)
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