IT’S YOU: CAREGIVER AND CLINICIAN PERSPECTIVES ON LUCIDITY IN PEOPLE LIVING WITH DEMENTIA
2024

Caregiver and Clinician Views on Lucidity in Dementia

Sample size: 26 publication Evidence: moderate

Author Information

Author(s): Gilmore-Bykovskyi Andrea, Benson Clark, Fehland Jess, Mueller Kim, Block Laura

Primary Institution: University of Wisconsin Madison

Hypothesis

What are the experiences and perspectives of caregivers and clinicians regarding episodes of lucidity in people living with dementia?

Conclusion

Caregivers and clinicians recognize episodes of lucidity as significant events, but their interpretations and the perceived impact of these events vary widely.

Supporting Evidence

  • Most participants recalled significant episodes of lucidity.
  • Caregivers described efforts to detect patterns in lucidity.
  • Participants supported using audiovisual methods to study lucidity.

Takeaway

Sometimes, people with dementia can have moments where they seem more like themselves again, and both caregivers and doctors have different ideas about what that means.

Methodology

The study used semi-structured interviews with 20 caregivers and 6 clinicians, analyzing data through theme identification and review.

Potential Biases

Potential biases may arise from the subjective nature of caregiver and clinician reports.

Limitations

The study is exploratory and relies on qualitative data, which may not be generalizable.

Participant Demographics

Participants included family caregivers and hospice clinicians, primarily from the University of Wisconsin.

Digital Object Identifier (DOI)

10.1093/geroni/igae098.1551

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