Reasons for Not Pursuing Genetic Counseling for Breast and Ovarian Cancer
Author Information
Author(s): Caruso Anita, Vigna Cristina, Maggi Gabriella, Sega Fabio Massimo, Cognetti Francesco, Savarese Antonella
Primary Institution: "Regina Elena" National Cancer Institute, Rome, Italy
Hypothesis
What psychosocial variables influence the decision to forgo genetic counseling for hereditary breast and ovarian cancer?
Conclusion
The study highlights the need to consider both individual and family dynamics in genetic counseling to improve participation rates.
Supporting Evidence
- 42.9% of subjects feared the consequences of negative information for their family.
- 30.4% of subjects reported feeling they could not handle the stress of hospital visits.
- 41.1% believed that having the test would not prevent them from getting cancer.
- 25% thought the test was a waste of time as it would not improve their quality of life.
Takeaway
Many people who could get genetic testing for cancer don't go through with it because they feel anxious or think it won't help them or their families.
Methodology
A psychological questionnaire was sent to 106 subjects who requested genetic counseling, and data were analyzed using various statistical tests.
Potential Biases
Potential bias due to self-selection of participants and reliance on self-reported data.
Limitations
The study's retrospective design may not accurately reflect the initial emotional state of participants during counseling.
Participant Demographics
The sample consisted of 56 subjects, including 2 men and 54 women, with an average age of 48.6 years.
Statistical Information
P-Value
p = 0.01
Statistical Significance
p<0.05
Digital Object Identifier (DOI)
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