Differences in Empowerment Between Lurkers and Posters in Online Patient Support Groups
Author Information
Author(s): Gunther Eysenbach, Andrea Meier, Cornelia F van Uden-Kraan, Constance HC Drossaert, Erik Taal, Erwin R Seydel, Mart AFJ van de Laar
Primary Institution: Institute for Behavioural Research, University of Twente
Hypothesis
Do lurkers in online patient support groups benefit as much as posters do?
Conclusion
Reading in itself is sufficient for lurkers to feel empowered in online patient support groups.
Supporting Evidence
- Lurkers reported lower mental well-being compared to posters.
- Lurkers were less satisfied with the online support group than posters.
- Participation in online support groups had a profound effect on feelings of empowerment for both lurkers and posters.
Takeaway
People who just read messages in online support groups can still feel better and more empowered, just like those who actively participate.
Methodology
An online survey was conducted among participants of Dutch online support groups for breast cancer, fibromyalgia, and arthritis.
Potential Biases
Participants may not represent all lurkers and posters due to self-selection in completing the questionnaire.
Limitations
The study had a small percentage of lurkers and relied on self-reported outcomes.
Participant Demographics
Lurkers were slightly older than posters, with no significant differences in sex, marital status, education, or diagnosis.
Statistical Information
P-Value
P = .002
Statistical Significance
p<0.001
Digital Object Identifier (DOI)
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