Study protocol: SPARCLE – a multi-centre European study of the relationship of environment to participation and quality of life in children with cerebral palsy
2006

SPARCLE Study: Environment's Impact on Children with Cerebral Palsy

Sample size: 818 publication Evidence: high

Author Information

Author(s): Allan Colver, SPARCLE group

Primary Institution: Northumbria Healthcare NHS Trust and School of Clinical Medical Sciences, University of Newcastle upon Tyne

Hypothesis

Children with similar severity of impairment will experience variable outcomes in terms of Participation and Quality of Life due to variation in Environmental Factors.

Conclusion

The study aims to identify Environmental Factors that can improve participation and quality of life for children with cerebral palsy.

Supporting Evidence

  • SPARCLE is a nine-centre European epidemiological research study.
  • The study uses validated instruments like KIDSCREEN and Life-H to assess outcomes.
  • Children with cerebral palsy often face various impairments, making them representative of a wider disabled population.
  • The study aims to inform EU policy on health, education, and social sectors.

Takeaway

This study looks at how the environment affects kids with cerebral palsy and their happiness and ability to participate in activities.

Methodology

A cross-sectional study using various validated instruments to assess participation and quality of life in children with cerebral palsy across nine European regions.

Potential Biases

Potential bias due to non-response and missing data will be examined.

Limitations

Some instruments are still being developed, and the study may not fully capture the experiences of children with severe impairments.

Participant Demographics

Children aged 8-12 years with cerebral palsy from nine European regions.

Digital Object Identifier (DOI)

10.1186/1471-2458-6-105

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