Proxy-Reported Pulmonary Outcomes Scale for Preterm Infants
Author Information
Author(s): Massie Sara E, Tolleson-Rinehart Sue, DeWalt Darren A, Laughon Matthew M, Powell Leslie M, Price Wayne A
Primary Institution: The University of North Carolina at Chapel Hill
Hypothesis
To develop an accurate, proxy-reported bedside measurement tool for assessment of the severity of bronchopulmonary dysplasia in preterm infants.
Conclusion
A prototype scale was successfully created using modified PROMIS methodology, which can serve as a model for developing proxy-reported outcomes scales in other pediatric populations.
Supporting Evidence
- The scale includes 26 questions that nurses assess before, during, and after routine care.
- The development process involved input from a multidisciplinary group of experts.
- The tool aims to improve the assessment of lung function in preterm infants with bronchopulmonary dysplasia.
Takeaway
The researchers made a new tool to help doctors understand how sick preterm babies are with lung problems, using answers from nurses who care for them.
Methodology
The study used a modified PROMIS methodology involving a multidisciplinary group to develop the Proxy-Reported Pulmonary Outcomes Scale through five phases including surveys, focus groups, and cognitive interviews.
Potential Biases
Potential bias due to reliance on proxy-reported measures and the specific clinical environments of the participating centers.
Limitations
The study was limited to academic medical centers, which may not represent all neonatal intensive care units.
Participant Demographics
Participants included registered nurses, nurse practitioners, neonatologists, developmental specialists, and feeding specialists from five academic medical centers.
Statistical Information
P-Value
p<0.05
Statistical Significance
p<0.05
Digital Object Identifier (DOI)
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