A decade to wait: Update on the average delay to diagnosis for endometriosis in Aotearoa New Zealand
2024

Update on the Average Delay to Diagnosis for Endometriosis in New Zealand

Sample size: 1024 publication 10 minutes Evidence: moderate

Author Information

Author(s): K. Ellis, R. Wood

Primary Institution: University of Canterbury

Hypothesis

What is the current average delay to diagnosis for endometriosis in New Zealand?

Conclusion

The average delay to diagnosis for endometriosis in New Zealand is now reported to be 9.7 years, which is longer than previously accepted.

Supporting Evidence

  • The average delay to diagnosis for endometriosis in New Zealand is now reported to be 9.7 years.
  • Delays were found to be longer in the North Island compared to the South Island.
  • Participants aged 18-24 reported significantly shorter delays than older age groups.
  • Recruitment was primarily through social media and patient organizations.

Takeaway

It takes a long time for people in New Zealand to find out they have endometriosis, and this study found it takes about 10 years on average.

Methodology

An online survey was conducted with 1024 self-reported endometriosis patients to collect data on the delay to diagnosis.

Potential Biases

The recruitment method may skew results towards longer delays due to the nature of the participant organization.

Limitations

The study may be affected by recall bias and does not account for individuals moving between regions during the delay.

Participant Demographics

Participants included a diverse group with a majority being NZ European, and a significant representation of Māori and Pasifika individuals.

Statistical Information

P-Value

p<0.05

Statistical Significance

p<0.05

Digital Object Identifier (DOI)

10.1111/ajo.13836

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