Family concerns in organ donor conversations: a qualitative embedded multiple-case study
2024

Family Concerns in Organ Donor Conversations

Sample size: 24 publication Evidence: moderate

Author Information

Author(s): van Oosterhout Sanne P. C., van der Niet Anneke G., Abdo Wilson F., Boenink Marianne, van Gurp Jelle L. P., Olthuis Gert

Primary Institution: Radboud University Medical Center

Hypothesis

What family concerns emerge during the organ donation process and how do clinicians respond to these concerns?

Conclusion

Understanding family concerns can help clinicians improve support during organ donation conversations.

Supporting Evidence

  • Families expressed concerns about the life-event of a relative’s death and the importance of dying well.
  • Clinicians often responded to family concerns with information or immediate solutions.
  • Concerns about donation procedures and the emotional burden of decision-making were prevalent among families.

Takeaway

Families have many worries when a loved one is dying and they need help understanding the donation process. Doctors should listen carefully to these worries.

Methodology

A qualitative embedded multiple-case study involving audio recordings and observations of donor conversations in eight Dutch hospitals.

Potential Biases

Potential social desirability bias may have influenced family responses.

Limitations

The study did not include families from minority groups, and some concerns may have been missed due to the focus on verbal communication.

Participant Demographics

Families of patients in intensive care units, specifically those involved in organ donation discussions.

Digital Object Identifier (DOI)

10.1186/s13054-024-05198-2

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