Using Patient-Reported Outcomes in Pediatric Inflammatory Bowel Disease
Author Information
Author(s): Azevedo Sara, Lopes Ana Isabel
Primary Institution: Gastroenterology Unit, Pediatrics Department, Academic Medical Centre of Lisbon, Santa Maria University Hospital
Hypothesis
The study aims to evaluate the usefulness of Patient-Reported Outcomes (PROs), particularly the PROMIS, in assessing pediatric patients with inflammatory bowel disease (IBD).
Conclusion
The incorporation of PROs into clinical practice for pediatric IBD enhances patient-centered care and improves understanding of the disease's impact on quality of life.
Supporting Evidence
- PROs provide insights into emotional well-being, social functioning, and quality of life.
- The PROMIS measures have shown strong correlations with clinical disease activity and pediatric-specific quality of life scales.
- Data from studies indicate that PROMIS pediatric measures are valid and responsive to changes in disease status.
Takeaway
This study shows that asking kids how they feel about their health can help doctors understand their needs better and improve their care.
Methodology
The review summarizes evidence from reliable articles recognized by PubMed and Cochrane Library regarding the use of PROs in pediatric IBD.
Potential Biases
Potential biases include reliance on self-reported data and the lack of standardized measures across different chronic diseases.
Limitations
The study highlights the need for broader demographic validation and integration with objective clinical markers.
Participant Demographics
The study included pediatric patients aged 9–17 years with inflammatory bowel disease.
Digital Object Identifier (DOI)
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