Caregiver Experiences During Hospice Transitions for ADRD Patients
Author Information
Author(s): Karla Washington, Stephanie Wladkowski, Kathryn Coccia, Marla Berg-Weger, Cara Wallace
Primary Institution: Washington University in St. Louis
Hypothesis
How do caregivers of patients with ADRD describe their support systems during transitions from hospice care?
Conclusion
Caregivers' experiences during care transitions are influenced by the patient's location of care and the availability of resources.
Supporting Evidence
- Patients with ADRD are the largest group of Medicare hospice beneficiaries.
- Caregivers often struggle with feelings of abandonment and uncertainty during transitions.
- Increased burden is placed on primary caregivers who may be socially isolated.
Takeaway
This study talks about how caregivers of patients with dementia feel when their loved ones leave hospice care and how their support systems help them.
Methodology
Interviews with caregivers of patients with ADRD who experienced a live discharge from hospice.
Participant Demographics
Caregivers of patients with ADRD, primarily in a hospice setting.
Digital Object Identifier (DOI)
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