Embedding the patient voice into research on spontaneous preterm birth—themes from a Preterm Birth Advisory Council
2024

Patient Perspectives on Preventing Preterm Birth

Sample size: 7 publication Evidence: moderate

Author Information

Author(s): Corbett Gillian, Daly Mandy, Keegan Dylan, Horgan Patricia, Keyes Catriona, Luethe Larissa, Corcoran Siobhan, McAuliffe Fionnuala M.

Primary Institution: UCD Perinatal Research Centre, University College Dublin

Hypothesis

How can the patient voice be integrated into research on spontaneous preterm birth prevention?

Conclusion

The Preterm Birth Advisory Council emphasizes the importance of including patient experiences in research to improve preterm birth prevention strategies.

Supporting Evidence

  • Patients emphasized the need for psychological support in preterm birth care.
  • Awareness of risk factors for preterm birth is crucial for timely interventions.
  • Preconceptual counseling can help reduce trauma associated with unexpected outcomes.
  • Partners' experiences during pregnancy at risk of preterm birth need more attention.
  • Language sensitivity is important when discussing pregnancy loss to avoid triggering trauma.

Takeaway

This study shows that listening to patients who have experienced preterm birth can help improve care and prevention strategies for future pregnancies.

Methodology

The study involved discussions with a council of patients who experienced spontaneous preterm birth to identify key themes for improving care.

Potential Biases

Potential bias due to the small, self-selected sample of participants who may have strong advocacy backgrounds.

Limitations

The study had a small sample size and was limited to individuals with prior experiences of preterm birth.

Participant Demographics

Participants were primarily women of European ancestry, aged 39-54, with prior experiences of preterm birth.

Digital Object Identifier (DOI)

10.1371/journal.pone.0312370

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