Transfer of Musculoskeletal Care for Patients with Cerebral Palsy
Author Information
Author(s): Sagade Bhushan, Thorn Connor, Portia Ross, May Catherine, Davies Evan, Rad Darius, Edwards Caroline, Aarvold Alexander
Primary Institution: University Hospitals Southampton NHS Foundation Trust
Hypothesis
The study aimed to evaluate the transfer of care for patients with cerebral palsy and chronic neuromuscular conditions from pediatric to adult services.
Conclusion
The transfer of care for patients with cerebral palsy and neuromuscular conditions remains inadequate, highlighting a significant unmet need for musculoskeletal healthcare services.
Supporting Evidence
- Only 20.5% of patients had a documented transfer of care plan.
- 56% of respondents reported a decline in musculoskeletal health after transfer.
- 69% of patients reported lack of an orthopaedic surgeon overseeing their care.
Takeaway
This study found that many young adults with cerebral palsy are not getting the care they need after moving from children's hospitals to adult services.
Methodology
A cross-sectional study using a 10-item questionnaire to evaluate the transfer program and patient satisfaction.
Potential Biases
There may be biases due to the self-reported nature of the questionnaire and the exclusion of families with known safeguarding issues.
Limitations
The study had a small sample size and potential response and recall biases.
Participant Demographics
Patients aged 17 to 28 years, with 23 males and 16 females; 32 had cerebral palsy and 7 had other neuromuscular conditions.
Statistical Information
P-Value
0.09
Statistical Significance
p<0.05
Digital Object Identifier (DOI)
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