PEOPLE LIVING WITH DEMENTIA AND THEIR FAMILY MEMBERS INFORM A PERSON-CENTERED MEASURE OF “HOME TIME”
2024

Understanding Home Time for People Living with Dementia

Sample size: 72 publication

Author Information

Author(s): Boucher Nathan, McKenna Kevin, Seidenfeld Justine, Vick Judith, Burke James, Plassman Brenda, Shepherd-Banigan Megan, Van Houtven Courtney

Primary Institution: Duke University

Hypothesis

Can a person-centered measure of 'home time' improve quality of life for people living with dementia?

Conclusion

The study suggests that enhanced task and social support for caregivers can improve their quality of life and reduce health facility visits for people living with dementia.

Supporting Evidence

  • Participants expressed frustration over limited control in health settings.
  • Spouses felt relief but also guilt when their partner was in a health facility.
  • Quality of life at home decreased due to care challenges faced by spouses.
  • Time spent on activities like reading and games was satisfying for participants.

Takeaway

This study talks to people living with dementia and their spouses to find out how they feel about spending time at home versus in health facilities.

Methodology

In-depth interviews were conducted with 32 people living with dementia and 40 spouses.

Participant Demographics

Participants included 32 people living with dementia aged 59-93 and their 40 spouses.

Digital Object Identifier (DOI)

10.1093/geroni/igae098.0665

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