Consumer Input into the Australian Cancer Trials Website
Author Information
Author(s): Rachel F. Dear, Alexandra L. Barratt, Sally Crossing, Phyllis N. Butow, Susan Hanson, Martin HN Tattersall
Primary Institution: The University of Sydney
Hypothesis
How can consumer involvement improve the design and effectiveness of a cancer clinical trials website?
Conclusion
The Australian Cancer Trials website effectively incorporates consumer feedback to provide accessible and informative resources for cancer patients.
Supporting Evidence
- 89% of patients found the website helpful for learning about clinical trials.
- All respondents believed patients should have access to the Australian Cancer Trials website.
- The website had 2,549 new visits and generated 17,833 page views in a short period after launch.
Takeaway
The Australian Cancer Trials website helps cancer patients find clinical trials and learn about their options, thanks to input from people affected by cancer.
Methodology
Consumers provided input during the design and development of the website, and a patient evaluation questionnaire was completed after exposure to the site.
Limitations
Not all clinical trials are registered, and some additional information may be missing if not provided by trial registrants.
Participant Demographics
Mean age of 53 years, 70% female, with various cancer types including breast cancer, sarcoma, and ovarian cancer.
Digital Object Identifier (DOI)
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