Engagement in HIV Cure Research in the Netherlands
Author Information
Author(s): Maaike A.J. Noorman, John B.F. de Wit, Tamika A. Marcos, Sarah E. Stutterheim, Thijs Albers, Kai J. Jonas, Chantal den Daas
Primary Institution: Utrecht University
Hypothesis
How aware and engaged are affected communities in HIV cure research?
Conclusion
Moderate awareness exists, but engagement remains passive with limited information-seeking; however, significant interest in a cure underscores the need for enhanced communication efforts.
Supporting Evidence
- Participants reported a mean awareness of 3.08 and a higher mean interest of 3.67.
- People with HIV showed greater engagement across all stages compared to key populations.
- Awareness was linked to individuals' perceived comprehensibility and control over HIV.
Takeaway
People know about HIV cure research but don't actively look for information; many are interested in finding a cure.
Methodology
A cross-sectional survey was conducted involving 499 people with HIV and 578 individuals without HIV, analyzing awareness, interest, and information-seeking behavior.
Potential Biases
Potential underrepresentation of certain demographics may skew results.
Limitations
The study may not fully capture the range of experiences within the communities, particularly among partners of people with HIV.
Participant Demographics
Mean age was 47 years; 91.8% identified as cisgender men; 64% held a bachelor's degree; 25% reported a migration background.
Statistical Information
P-Value
p<0.001
Statistical Significance
p<0.05
Digital Object Identifier (DOI)
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