Experiences of People Living with Post-Tuberculosis Lung Disease in Brazil
Author Information
Author(s): de Almeida Carlos Podalirio Borges, Furin Jennifer Joan, Sumiya Alberto, Silva Denise Rossato, Mitnick Carole Diane
Primary Institution: Federal University of Sul e Sudeste do Pará
Hypothesis
What are the experiences of people living with post-tuberculosis lung disease and how do healthcare workers manage it?
Conclusion
The study reveals specific needs from patients and providers such as a lack of knowledge about PTLD, physical limitations, and stigmatization due to PTLD.
Supporting Evidence
- PTLD affects daily activities and emotional well-being.
- Stigma surrounding PTLD leads to social isolation.
- Healthcare access is limited for individuals with PTLD.
- Participants reported significant physical limitations due to PTLD.
Takeaway
People who have had tuberculosis can face ongoing health problems that make everyday life really hard, and they often feel alone and misunderstood.
Methodology
An exploratory qualitative study with open-ended interviews conducted with a purposive sample of people living with PTLD and healthcare workers.
Potential Biases
The research team included healthcare providers, which may have influenced the interpretation of participant experiences.
Limitations
The findings may not be representative of the broader population of PLPTLD in Brazil or other regions due to the small sample size from only two cities.
Participant Demographics
{"people_with_PTLD":{"mean_age":56.6,"gender_distribution":{"female":15,"male":16},"cities":{"Palmas":5,"Porto_Alegre":26}},"healthcare_workers":{"mean_age":36.2,"gender_distribution":{"female":13,"male":2}}}
Digital Object Identifier (DOI)
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