Operationalizing goal setting as an outcome measure in trials involving patients with frailty, multimorbidity or complexity
2024

Using Goal Setting in Parkinson's Disease Trials

publication Evidence: moderate

Author Information

Author(s): Emma Tenison, Katherine Lloyd, Yoav Ben-Shlomo, Emily J. Henderson

Primary Institution: University of Bristol

Hypothesis

Can a goal-oriented outcome measure effectively evaluate a multicomponent intervention for people with parkinsonism?

Conclusion

A goal-oriented outcome measure can be effectively used in trials for parkinsonism, providing meaningful insights into patient experiences.

Supporting Evidence

  • Goal-oriented outcomes can capture the complex experiences of patients with Parkinson's disease.
  • The Bangor Goal-setting Interview allows for personalized goal setting and tracking.
  • Using goal-oriented measures can improve the relevance of outcomes in clinical trials.

Takeaway

This study shows that setting personal goals can help people with Parkinson's disease feel better and track their progress in a way that matters to them.

Methodology

The study adapted the Bangor Goal-setting Interview for use in a randomized controlled trial evaluating a multicomponent care model for Parkinson's disease.

Potential Biases

Potential bias from caregiver input in goal setting, especially for participants with cognitive impairment.

Limitations

The lack of a defined minimal clinically important difference for the Bangor Goal-setting Interview limits its utility.

Participant Demographics

Participants included individuals with parkinsonism, frailty, multimorbidity, and cognitive impairment.

Digital Object Identifier (DOI)

10.1016/j.conctc.2024.101411

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