Worries and Concerns among Inflammatory Bowel Disease Patients Followed Prospectively over One Year
Author Information
Author(s): Lars-Petter Jelsness-Jørgensen, Bjørn Moum, Tomm Bernklev
Primary Institution: Oslo University Hospital Aker
Hypothesis
The primary aim of this study was to assess disease-related worries and concerns among IBD patients followed prospectively for one year.
Conclusion
Patients with IBD experience a consistent pattern of disease-related worries over a year, with higher levels of worry associated with increased IBD symptoms.
Supporting Evidence
- The highest rated worries included having an ostomy bag, loss of bowel control, and reduced energy levels.
- Worries about undergoing surgery or having an ostomy bag persisted even when symptoms improved.
- The Norwegian RFIPC is valid and reliable.
Takeaway
People with inflammatory bowel disease often worry about their health, and these worries stay the same over time, especially when their symptoms get worse.
Methodology
Patients completed the RFIPC at three occasions during one year, and various statistical analyses were performed to assess the data.
Limitations
The study only included outpatients without severe disease, which may limit the generalizability of the findings.
Participant Demographics
{"mean_age":{"UC":46.9,"CD":40.0},"gender_distribution":{"UC":{"female":43,"male":49},"CD":{"female":36,"male":12}}}
Statistical Information
P-Value
p<0.01
Statistical Significance
p<0.01
Digital Object Identifier (DOI)
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