Priorities of Children with Spinal Cord Injuries
Author Information
Author(s): Ríos-León Marta, Onal Bashak, Arango-Lasprilla Juan Carlos, Augutis Marika, Graham Allison, Kelly Erin Hayes, Kontaxakis Antonis, López-Dolado Elisa, Scheel-Sailer Anke, Valiullina Svetlana, Taylor Julian
Primary Institution: Buckinghamshire Healthcare NHS Trust
Hypothesis
The study aims to describe and compare the overall priorities of European youth with spinal cord injuries and their parents or caregivers.
Conclusion
Adolescents and young adults with spinal cord injuries highlighted health domain priorities, while their parents and caregivers considered both life and health domains.
Supporting Evidence
- 202 participants were included in the study, with equal representation from youth and their parents or caregivers.
- The top three health priorities for youth aged 8-12 years were bladder function, leg/foot movement, and bowel function.
- Adolescents aged 13-25 years prioritized leg/foot movement, bowel function, and bladder function.
- Parents and caregivers highlighted life domain priorities such as adulthood and parenthood expectations.
Takeaway
Kids with spinal cord injuries and their parents have different ideas about what is most important for their health and life, and understanding these can help improve their care.
Methodology
A cross-sectional survey was conducted in six European countries with youth aged 8-25 years with pediatric-onset spinal cord injuries and their parents or caregivers.
Potential Biases
Differences in reported priorities may be influenced by how children accept their circumstances, affecting their life satisfaction and participation.
Limitations
The study only addressed broad life and health areas and did not explore the impact of each area of priority in depth.
Participant Demographics
Participants included youth aged 8-25 years with a diagnosis of pediatric-onset spinal cord injury, with a majority being male (58.4%) and diagnosed with motor incomplete SCI (55.4%).
Statistical Information
P-Value
<0.05
Statistical Significance
p<0.05
Digital Object Identifier (DOI)
Want to read the original?
Access the complete publication on the publisher's website