Myotilin gene duplication causing late‐onset myotilinopathy
2025

Myotilin Gene Duplication and Late-Onset Myotilinopathy

Sample size: 2 publication Evidence: moderate

Author Information

Author(s): Marco Spinazzi, Marco Savarese, Franck Letournel, Lydia Sagath, Florence Manero, Agnès Guichet, Alexander Hoischen, Corinne Metay, Julien Gouju, Bjarne Udd

Primary Institution: Neuromuscular Reference Center, Department of Neurology CHU d'ANGERS

Hypothesis

Can a duplication of the MYOT gene cause late-onset myotilinopathy?

Conclusion

The study identifies a duplication of the entire MYOT gene as the cause of late-onset myotilinopathy, emphasizing the importance of long-read sequencing in genetic diagnosis.

Supporting Evidence

  • The study expands the molecular spectrum of myotilinopathy.
  • Long-read sequencing was crucial for diagnosing genetic neurological diseases.
  • Clinical features included late-onset distal myopathy and muscle hypertrophy.
  • Pathological findings included myotilin aggregates and autophagic vacuoles.

Takeaway

This study found that a gene duplication can cause a rare muscle disease that usually shows up later in life, and special DNA testing can help find it.

Methodology

The study involved clinical, radiological, pathological, and molecular analysis, including long-read sequencing of affected family members.

Limitations

The study is based on a small family sample, which may limit the generalizability of the findings.

Participant Demographics

Two affected patients from a French family, including a 70-year-old man and his brother.

Digital Object Identifier (DOI)

10.1111/ene.70029

Want to read the original?

Access the complete publication on the publisher's website

View Original Publication