RACIAL//ETHNIC DIFFERENCES IN WILLINGNESS TO PARTICIPATE IN ALZHEIMER’S DISEASE RESEARCH
2024

Racial and Ethnic Differences in Willingness to Participate in Alzheimer's Disease Research

Sample size: 1274 publication Evidence: moderate

Author Information

Author(s): Skemp Eleanor, Sathish Tanish, Zhang Yichen, Carpenter Brian

Primary Institution: Washington University in St. Louis

Hypothesis

What are the racial and ethnic differences in attitudes about participating in Alzheimer's disease research?

Conclusion

The study found that Black individuals were less willing to participate in Alzheimer's research compared to White and Hispanic individuals, highlighting the need for targeted recruitment strategies.

Supporting Evidence

  • A higher percentage of Blacks were unwilling to participate in a research registry or a cohort study than Whites and Hispanics.
  • Blacks were less likely to perceive participation as a contribution to society.
  • Hispanics expressed greater concern about time commitment and potential negative health news in cohort studies.

Takeaway

This study looked at why some people from different races are less likely to join Alzheimer's research, finding that Black people are often less willing to participate.

Methodology

Data was collected from a national survey of U.S. adults with oversampling of Black respondents.

Potential Biases

Potential biases may arise from the oversampling of Black respondents.

Limitations

The study used a relatively crude racial/ethnic categorization.

Participant Demographics

Participants self-identified as White (47.3%), Black (43.9%), and Hispanic (8.8%).

Statistical Information

P-Value

p < 0.001

Statistical Significance

p<0.006

Digital Object Identifier (DOI)

10.1093/geroni/igae098.3702

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