Palliative care in advanced dementia; A mixed methods approach for the development of a complex intervention
2008

Improving Palliative Care for Patients with Advanced Dementia

Sample size: 80 publication Evidence: moderate

Author Information

Author(s): Sampson Elizabeth L, Thuné-Boyle Ingela, Kukkastenvehmas Riitta, Jones Louise, Tookman Adrian, King Michael, Blanchard Martin R

Primary Institution: Royal Free and University Medical School, London, UK

Hypothesis

Can a mixed methods approach improve the quality of palliative care for patients with advanced dementia?

Conclusion

The study aims to develop and pilot a palliative care intervention for patients with advanced dementia and their carers.

Supporting Evidence

  • Patients with advanced dementia often receive poor end-of-life care.
  • Advance care planning can lead to better decision-making for patients and families.
  • Qualitative interviews revealed key barriers to effective palliative care.

Takeaway

This study is trying to help people with severe dementia get better care when they are very sick by talking to their families and doctors about what they want.

Methodology

The study uses a mixed methods approach, including qualitative interviews and a pilot intervention trial.

Potential Biases

Potential bias in caregiver reports and the subjective nature of qualitative data.

Limitations

The study may face challenges in recruitment and the ability of patients to communicate their needs.

Participant Demographics

Patients over 70 years old with advanced primary degenerative dementia and their family members or friends acting as carers.

Digital Object Identifier (DOI)

10.1186/1472-684X-7-8

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