Improving Disclosure of Dementia Diagnosis
Author Information
Author(s): Martin P Eccles, Robbie Foy, Claire H Bamford, Julian C Hughes, Marie Johnston, Paula M Whitty, Nick Steen, Jeremy G Grimshaw
Primary Institution: Centre for Health Services Research, University of Newcastle upon Tyne
Hypothesis
The study aims to develop a tailored theory-based intervention to promote appropriate disclosure of diagnosis of dementia.
Conclusion
The study will lead to a proposal for a randomized controlled trial to improve the process of disclosing dementia diagnoses.
Supporting Evidence
- Approximately 600,000 people in the UK have dementia, which is 5% of the population aged 65 and older.
- Disclosure of a diagnosis to individuals with dementia is less likely than in other terminal conditions.
- Changing clinical practice is often unpredictable and slow.
Takeaway
This study is trying to find better ways for doctors to tell patients they have dementia, so patients can understand their condition and plan for the future.
Methodology
The study will use a multidisciplinary consensus development process, a questionnaire survey of old age mental health teams, and pilot testing of a theory-based intervention.
Limitations
The study may face challenges in achieving a high response rate from the surveyed mental health teams.
Participant Demographics
Participants will include members of old age mental health teams across the UK.
Digital Object Identifier (DOI)
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