Development of a Parent Version of the Quality of Life Survey for Children
Author Information
Author(s): Hutchings Hayley A, Upton Penney, Cheung Wai-Yee, Maddocks Alison, Eiser Christine, Williams John G, Russell Ian T, Jackson Sonia, Jenney Meriel EM
Primary Institution: School of Medicine, Swansea University
Hypothesis
The study aims to develop and validate a parent version of the Manchester-Minneapolis Quality of Life child form (MMQL-UK (CF)) and to determine the level of association between the child and parent versions.
Conclusion
The MMQL-UK (PF) showed moderate to good correlations with the MMQL-UK (CF) component scores, indicating its usefulness in assessing health-related quality of life from a parent's perspective.
Supporting Evidence
- The internal consistency of the MMQL-UK (PF) components exceeded the accepted criterion of 0.70.
- Moderate correlations were evident between comparable components of the MMQL-UK (PF) and the proxy PedsQL™.
- Significant differences were identified between parents of healthy children and those with chronic conditions.
Takeaway
This study created a questionnaire for parents to help understand how their child's health affects their quality of life, especially when kids can't answer for themselves.
Methodology
The study involved developing the MMQL-UK (PF) based on the MMQL-UK (CF) and validating it through comparisons with the PedsQL™ quality of life scales.
Potential Biases
Proxy reports may not accurately reflect the child's view, particularly for some components.
Limitations
The study may not fully capture the child's perspective, especially in cases where children are too young or ill to provide their own assessments.
Participant Demographics
Participants included 874 children and 572 parents or carers, with a mix of healthy children and those with chronic conditions.
Statistical Information
P-Value
p<0.01
Statistical Significance
p<0.01
Digital Object Identifier (DOI)
Want to read the original?
Access the complete publication on the publisher's website