MY LIFE WAS EASY; HIS LIFE TAKES ALL OF MY TIME: THE INTERPLAY OF SUPPORT STRUCTURES AND DEMENTIA CARE NEEDS IN THE HOME
2024

Support Structures and Dementia Care Needs in the Home

Sample size: 83 publication Evidence: moderate

Author Information

Author(s): Allison Theresa, Smith Alexander, Gubner Jennie, Covinsky Kenneth

Primary Institution: University of California San Francisco

Hypothesis

How do support resources affect the care needs of individuals living with dementia?

Conclusion

The study found that there are significant mismatches between available resources and the care needs of people living with dementia.

Supporting Evidence

  • Participants identified complex mismatches between resources and care needs.
  • Spirituality was noted as a powerful motivator for providing care.
  • Adequate social support and financial resources were deemed critical.

Takeaway

This study looked at how people take care of family members with dementia and found that having enough help and money is really important.

Methodology

The study used data from two ethnographic studies, including interviews and fieldnotes, and analyzed them using ATLAS.ti.

Limitations

The study may not fully capture the experiences of all caregivers due to its specific focus and sample.

Participant Demographics

Participants included 38 people living with dementia, 34 family care partners, and 11 professionals.

Digital Object Identifier (DOI)

10.1093/geroni/igae098.2178

Want to read the original?

Access the complete publication on the publisher's website

View Original Publication