UK Cancer Genetics Services Overview
Author Information
Author(s): Wonderling D, Hopwood P, Cull A, Douglas F, Watson M, Burn J, McPherson K
Primary Institution: Cancer and Public Health Unit, London School of Hygiene and Tropical Medicine
Hypothesis
To describe NHS cancer genetic counselling services and compare UK regions.
Conclusion
There are significant regional variations in access to cancer genetics services due to staff shortages and differences in referral rates.
Supporting Evidence
- There were only 11 dedicated cancer geneticists across the 22 centres.
- Referral rates varied from 76 to 410 per million per annum across the regions.
- Median waiting time for an initial appointment was 19 weeks, ranging from 4 to 53 weeks.
Takeaway
This study looked at cancer genetics services in the UK and found that some areas have a lot of people waiting for help while others have more resources.
Methodology
Cross-sectional study over 4 weeks with attendee surveys at 22 regional cancer genetics services.
Limitations
Only 11 dedicated cancer geneticists were available across the 22 centres, and there were significant waiting times for appointments.
Participant Demographics
Individuals aged over 18 attending clinics at the cancer genetics services.
Digital Object Identifier (DOI)
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